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Dear Ex-Employer
Dear Katie, You were rude when I told you that I have epilepsy after you hired me. You made me feel like a hassle, even though I just continued to do my job. I didn’t work many hours, but not...
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I Had a Seizure in Public…
Hey my lovelies, I have been busy working on my poetry and thinking about other approaches for a public talk. Life at Full Volume has been put on the back burner for a bit, but I am back! The other day...
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Finding myself through Epilepsy
I have been in a whirlwind of seizures that just stopped yesterday. It is hard to remember who, or where I am when I am seizing and recovering, non stop. When I say “who I am” it is a very deep...
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Epilepsy VS Family
It has been just over a year since I have been living with my fiancee, and am not in immediate reach of my mum or dad if I have a medical emergency. My Fiancee is amazing in a medical emergency. She is...
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2018 in Review
2018 was a weird year for me. I definitely had some big achievements, and some set backs. On the positive side, My fiancee and I started planning our wedding. Okay, let’s be honest: my fiancee is the...
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Reflecting on Being Housebound for 5 Months
Hey friends! Sorry I have been busy with other projects. I guess that happens though, right? I have been reflecting on being home bound due to my massive seizure in December. I am a very extroverted...
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Help Support me in Making a Documentary about epilepsy!!
Hey friends! I have super exciting news! Please help us vote for our documentary STRONG’ at STORYHIVE TELUS Network so we can bring awareness to epilepsy, and maybe help to bring a cure. Ultimately, I...
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Choosing Not to Go Out
Hey Friends! It has been eons since I have posted on here. I’ve been super busy with wedding planning, the wedding itself, and actually being married! My wife and I are elated- except I’m also feeling...
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Practicing Aggressive Self Care
I know that the term self care is a buzz word these days. I learned about it almost a decade ago, but didn’t think a ton of it. Right now though, I am practicing “aggressive self care” as I had an...
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Coming Together during The Pandemic
Today I had an appointment with my epilepsy specialist and resident doctor and told them I was nervous about covid-19. They were both reasonable people but my epilepsy specialist told me try not to...
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